Hello!
My spouse got in to a new field that will force us to move wherever they need us for years at a time postings. We were initially under the impression we would have a good case for being accommodated to be able to stay here, because of my high medical needs and the amount of specialists I am under the care of - but now that he is at training it is coming out that they say they will try to accommodate more than they actually will. Basically, you will go where they need you - but the accommodation will be that there is a hospital within driving distance. I am so anxious about it now.
I have an incredible family doctor that I’ve had forever, who is very supportive, and I don’t know how I would have made it this far without them. I see five other specialists(three directly related to my accident/disability), and have been on a three year+ wait list for 2 years almost for another one(relates to my disability). If we have to be moved away, I am terrified I will have to go back to the beginning on years long wait lists again to obtain the same care and one I haven’t got into yet, that my quality of life will get even worse, and that my insurance companies will finally be able to cancel my claim due to not having the support and treatment anymore while I wait for new care providers(and who knows if I will even find ones who are as willing to help as my current - it took me years to get the care I have).
Has anyone else faced this? Did you find it was difficult to get care again? Or get the same level of care? Did you need to wait years to get back in to the same specialties? I am so upset that I will lose all the care I have waited and fought so hard for. My pain is horrible, and I am also afraid of being ostracized by a new doctor when they see the medications I have to take - as many are afraid to prescribe lots of medications these days.
Any advice/experience/tips for moving(against my choice) and avoiding having issues with insurance while trying to re-establish care - or any tips on how to re-establish care also, would be greatly appreciated!
I’m sorry for the long message, the anxiety is absolutely killing me and I’m having a really bad day with pain that is making me even more anxious of what will happen without a supportive care team in a place I don’t want to be. I love my husband, so staying behind is not in the question. This is just very hard.